Please support DEBRA, a charity that helps people with Epidermolysis Bullosa (EB) a painful and incurable skin condition. Tune into BBC Lifeline on July 20 on the BBC2 channel to support the DEBRA UK chapter’s appeal.
I just watched the video you posted and I also saved it into my computer
and I wanted to thank you for sharing it because it really touched me so deeply and you were very inspiring and I think its very cool that you like storm chasing because so do I I mean I've never actually been storm chasing before but I've seen tons of movies and shows about it and I've always wanted to do it especially when it comes to tornadoes the closest I've ever been to a tornado was a few years ago when my family and I went on a road trip out to Nebraska, Kansas, and Oklahoma (States in the middle of the U.S which is also named tornado alley) and as we were driving I noticed this huge cloud that lasted for miles and it was either a super cell or a mesocyclone... I instantly recognized it just from being obsessed with storms ever since I was probably about 6 so that was really cool
But anyway thanks again so much for this video and I really wish I could do more to help... but since I cant I will keep you and everyone else who is going through this in my prayers
I'm just so thankful to have an idol like Celine who supports so many things like this because if it wasn't for her I wouldn't have heard about any of these disease and sicknesses that I'm hearing about that I now know I'm capable of helping or at least wanting to if I cant, and like what Rebecca90 said, I'm fortunate that I don't have a disease or anything but it makes me want to cry when I see people who do and it makes me feel guilty when ever I say that I'm fortunate when there are people who are not and it is not fair at all and I hope that one day I will be able to support something/s like this and like what Celine is supporting today
I wish all the best for you Sam and for everyone else who is going through EB
and thanks once again for the video and your inspiration
and thank you Celine for being so supportive in these types of things for so many years.. you are God's gift to us
I love you Céline & Rene, I pray that you will get through this.
& please don't apologize, we all understand what you're going through
& that you need to be with Rene right now
I will always have all the love and respect for you both,
no matter what<3
Hi all. Rebecca90, thank you for your support, I am glad you were able to watch it. Indeed, whenever any of us see others worse off, it really makes you be thankful for what you have. I understand that completely. For those who wanted to watch but couldn't get the channel, as promised it's now on YouTube. Hopefully this link is allowed here: https://www.youtube.com/watch?v=PdlrPtwR4FM. If not, please just search for "BBC Lifeline DEBRA" and you should see my face and name where you can watch the video. Thank you to *everyone*. Your support really truly makes a world of difference to us all.
Celine gives me a reason to go on. She is my inspiration for life. Lucky enough to meet her in 2003, March 26th making Vegas show 20 mins late! And also hugged in audience Jan 8th and signed program Jan 11 2014 . See my incredible story
...I watched BBC Lifeline and I was really shocked when I saw these pictures. I actually had tears in my eyes! I had never heard of EB before and seeing this just made me realize again how fortunate I am to be in good health and it made me feel very sorry for all those who are not I wish you the best of luck with this appeal!!
@SamSmith: I have just read the BBC Lifeline page and what you wrote there, and I've also read parts of your blog. I have made a small donation - it's not much, but I hope it will help anyway. I'm now waiting for the Lifeline programme to be aired
Wonderful!! Thank you @SamSmith! Can't wait to get the link!
Hi again guys . Thanks for your support @Leah-M and @rsceline, it really does mean a lot. Indeed, EB is a very rare condition and Celine's support is momentous. It will always be there on YouTube, Lifeline do a different charity every month, but even if you don't see it before the next one, it will ALWAYS be on the YouTube channel. I can't say it enough, but *sincerely* your support means the world. Thank You. As soon as it's aired tomorrow, I will post the link to it here if I can on YouTube, but just search for "BBC Lifeline".
OMG thank you SamSmith, but is it only available to do on the 20th though??? Cuz hopefully ill be able to try this hoping things wont get in the way of my time, but thanks again and I most definitely will try and do this
Thanks for the info @SamSmith. I, like @Leah, won't be able to watch it either. But will have to check it out on YouTube. I have never really heard of EB. Cool Celine is bringing some attention to it. Hope all goes really well!
Hey Leah-M! Thanks so much! You can help actualy - please go to http://justgiving.co.uk/debralifeline where donations can be taken from all over the world. Then, after Sunday's premier of the program, it will be available to watch on YouTube. *Thank You* for your support, it means the world to everyone like me with EB xx...
I would love to help, but we don't have access to this channel here
Btw my mom's name is Debra haha
I hope this charity goes well
I'll tune in if I can make it and see how I can help
Celine and Team. Thank You *so* much for promoting the appeal. As you know, I've got EB and I've always had a magical connection with you. Your heart of gold and spirit and indeed music has got me through and inspired me in so many ways for over 20 years. Thank you for ALL you have done for me and by doing this you are being my hero again and helping ALL the EB heroes out there. Children, adults and families all across the Globe. We're "Thankfull" to have an "Incredible" lady on our side!
Copyright © 1996-2014 Five Star Feeling Inc. Copyright © 1996-2014 Sony Music Entertainment Canada Inc. All Rights Reserved.